When case managers cannot approve what you need Your case manager is not the wall. Your case manager is standing in front of the wall, absorbing your frustration for a...
The Transition Crisis in Numbers: What the Data Actually Shows Roughly fifty thousand autistic young people turn 18 every year in the United States. The research tracking what happens to...
The Olmstead Rollback: What the Executive Order on Institutionalization Means for Your Family On July 24, 2025, a federal executive order instructed the Attorney General to reverse the judicial precedents...
What $1 trillion in Medicaid cuts means for your family Home and community based services are optional under federal Medicaid law. Nursing facilities are not. When federal money contracts, states...
The Functioning Labels Debate: Why It Matters for Your Family’s Advocacy This isn’t an academic argument happening somewhere else. It shapes policy, drives funding decisions, and determines whether your adult...
The CMS Access Rule: 5 new requirements that could transform HCBS if they survive A 2024 federal rule tells states how much of your adult child’s service dollar has to...
The ADA at 35: Why Severe Autism Still Gets Left Behind by the Law’s Own Framework Thirty-five years after the Americans with Disabilities Act became law, a July 2025 report...
The ARPA cliff: what happens now that the emergency HCBS money is gone States planned to spend an estimated $37.1 billion on home and community based services, most of it...
Profound autism: why 1 in 4 autistic people need a different policy conversation The Lancet Commission drew a line: eight or older, needing 24-hour access to an adult caregiver, with...
Understanding service deserts and waitlist delays Some Michigan counties simply don’t have the service you need, at any price, on any waitlist. That’s not a failure of your advocacy. It’s...
