Understanding Long Waitlists and What to Do While You Wait The HCBS waiver waitlist is rationing dressed in administrative language. The wait is real, the wait is long, and the...
What $1 trillion in Medicaid cuts means for your family Home and community based services are optional under federal Medicaid law. Nursing facilities are not. When federal money contracts, states...
The two bills that could actually save your services One puts emergency money into a collapsing workforce for two years. The other removes the structural rule that makes an institution...
The CMS Access Rule: 5 new requirements that could transform HCBS if they survive A 2024 federal rule tells states how much of your adult child’s service dollar has to...
The Drexel study: 99% of autistic adults are not receiving public employment services Researchers matched nine years of Medicaid and Vocational Rehabilitation records against the population that needed help working....
The “Benefits Cliff”: Work, Medicaid, and Keeping Supports How part-time work actually affects SSI and Medicaid, why the cliff is mostly a wall built by misinformation, and the federal work...
The ARPA cliff: what happens now that the emergency HCBS money is gone States planned to spend an estimated $37.1 billion on home and community based services, most of it...
SSI at 18 and the Age-18 Redetermination Why eligibility shifts the day a young adult turns eighteen, why initial denial rates are brutally high, and how to start documentation at...
Special Needs Trusts: First-Party, Third-Party, and Pooled Three trust structures, one critical rule about Medicaid payback, and the most common mistake families make: putting the inheritance directly into the autistic...
Transportation barriers (paratransit, NEMT, brokerages, and workarounds) A missed pickup doesn’t just cost a ride. It costs the appointment, the day program slot, the job shift, and sometimes the entire...
