Medicaid

Almost everything an autistic adult receives comes through Medicaid, and almost none of it is guaranteed.

This category covers the waiver programs that pay for community-based support: who is eligible, what services each one includes, how the waiting lists work, and what happens when a service is removed from the array. It also tracks federal rule changes, because a decision made at CMS reaches a kitchen table in Michigan a year or two later. Written for families, not for billing departments.

Starting July 2027, States Must Publish Their Waiting List Numbers. Here’s How to Use Them.

Advocacy Resources Federal Guidance Medicaid Waiting Lists

Starting July 2027, States Must Publish Their Waiting List Numbers. Here’s How to Use Them.For more than forty years no state had to tell anyone how long people wait for...

Medicaid Policy Analysis State Comparisons Waiting Lists

Only One State Has No Waiting List for Disability Services. Here’s What It Costs.I went looking for states that eliminated their waiting lists and found that most of the ones...

Comparison Tools How-To Guides Medicaid Michigan-Specific

Michigan’s Three Waivers Explained: HSW, MI Choice, and the Children’s WaiverMichigan runs three separate home and community based waivers, and they do not connect the way families assume. Different eligibility,...

Data & Research Medicaid Michigan-Specific Waiting Lists

63 Months: The Average Wait for Autism Services Through Medicaid WaiversMore than five years. That is the national average wait for an autism-specific Medicaid waiver, against 37 months for intellectual...

Data & Research Funding & Rates Medicaid Policy Analysis

96% of the Money That Keeps People Home Is Optional. Most of the Money That Institutionalizes Them Is Not.Federal Medicaid law makes nursing facility care mandatory and home and community...

Advocacy Resources Legal Developments Medicaid Michigan-Specific

K.B. v. Michigan DHHS: what the children’s HCBS settlement means for adult services A federal court made Michigan build statewide intensive home and community based services for children. Your adult...

Funding & Rates Medicaid Policy Analysis Workforce Crisis

The ARPA cliff: what happens now that the emergency HCBS money is gone States planned to spend an estimated $37.1 billion on home and community based services, most of it...

Documentation Strategies How-To Guides Medicaid Policy Analysis

Medicaid work requirements start January 2027. Is your family member exempt? Eighty hours a month, ages 19 to 64, starting January 1, 2027. Your adult child is almost certainly exempt....

Federal Guidance Medicaid Policy Analysis Workforce Crisis

The CMS Access Rule: 5 new requirements that could transform HCBS if they survive A 2024 federal rule tells states how much of your adult child’s service dollar has to...

Data & Research Employment First Feature Medicaid

The Drexel study: 99% of autistic adults are not receiving public employment services Researchers matched nine years of Medicaid and Vocational Rehabilitation records against the population that needed help working....

Medicaid

Starting July 2027, States Must Publish Their Waiting List Numbers. Here’s How to Use Them.

Only One State Has No Waiting List for Disability Services. Here’s What It Costs.

Michigan’s Three Waivers Explained: HSW, MI Choice, and the Children’s Waiver

63 Months: The Average Wait for Autism Services Through Medicaid Waivers

96% of the Money That Keeps People Home Is Optional. Most of the Money That Institutionalizes Them Is Not.

K.B. v. Michigan DHHS: What the Children’s HCBS Settlement Means for Adult Services

The ARPA Cliff: What Happens Now That the Emergency HCBS Money Is Gone

Medicaid Work Requirements Start January 2027: Is Your Family Member Exempt?

The CMS Access Rule: 5 New Requirements That Could Transform HCBS If They Survive

The Drexel Study: 99% of Autistic Adults Not Receiving Public Employment Services