Oasis For Autism

The Number That Explains Everything: Half the Workforce Caring for Our Kids Is on Public Assistance

Caregiver EconomicsData & ResearchProvider SustainabilityWorkforce Crisis

The Number That Explains Everything: Half the Workforce Caring for Our Kids Is on Public Assistance

Forty nine percent of direct care workers rely on public assistance. The median wage is $17.36 an hour and median annual earnings are under $26,000. This is not a recruitment problem. It is the price of the job, and it explains the rest.

By Jim Palasty · 12 min read · Direct care wages
Step 01
A rate is set
Medicaid reimbursement determines what a provider can pay. The provider cannot charge families the difference and cannot ignore staffing ratios.
Step 02
A wage follows
The median direct care wage lands at $17.36 an hour, under $26,000 a year, and below occupations with similar or lower entry requirements in all 50 states.
Step 03
The worker leaves
Turnover runs 37.1% a year, and 63.7% of those who left in 2024 had been there less than twelve months. Your service is the thing that breaks.
Start here
At your next planning meeting, ask what your provider pays its direct support professionals and how long the person supporting your family member has been there

These are not rude questions and a decent provider will answer them. The wage tells you whether the arrangement is stable. The tenure tells you whether you are about to go through another introduction, another set of instructions, another stranger learning what a hard afternoon looks like in your house. Nearly two thirds of the people who left this field last year had been in the job under a year. If the answer you get is a short tenure at a low wage, plan for a gap rather than being surprised by one.

Featured

$17.36

Median wage

The median hourly wage for direct care workers in 2024, with median annual earnings just under $26,000. That is the pay for medication administration, crisis response, and personal care.

Featured

5.4 million people

The size of the direct care workforce, and it is projected to add over 772,000 new jobs by 2034, the largest growth of any job sector in the country.

Below comparable work

PHI finds direct care workers earn less than workers in occupations with similar or lower entry-level requirements in all 50 states and the District of Columbia.

37.1%

37.1%

Annual turnover

The weighted mean turnover rate for direct support professionals in the 2024 NCI-IDD survey, ranging from 16.7% to 53.7% across states.

Gone within a year

63.7% of the DSPs who left their agency in 2024 had been employed there less than twelve months. The job does not lose veterans. It never makes them.

36% near poverty

Live in households below 200% of the federal poverty level, and roughly 15% live below the poverty line outright.

The direct care workforce, by the numbers

Workforce size5.4 million
Median hourly wage$17.36
Median annual earningsUnder $26,000
Rely on public assistance49%
Below 200% of poverty36%
Below the poverty lineAbout 15%
DSP annual turnover37.1%
Left within twelve months63.7%
The arithmetic in my own kitchen

She had been with us four years, which in this field is close to unheard of, and she told me she was leaving because she had just been recertified for food assistance for the third year running and could not do it anymore. She was not complaining about us. She loved my daughter. She was doing math, and the math was correct.

The wage is the policy. Everything else is downstream.
Your move

What families can actually do with this number

Escalate in this order

  1. 1Ask your provider what it pays direct support professionals and whether it received the most recent wage passthrough. Ask by email.
  2. 2Ask how long the person currently supporting your family member has worked there, and what the agency’s turnover was last year.
  3. 3Log every unfilled shift, with the date and the hours missed. That log is the only local evidence anyone will ever have.
  4. 4Report a passthrough failure or a chronic staffing gap at your CMHSP or PIHP board meeting during public comment.
  5. 5Write your state legislator with the wage figure, the turnover figure, and one sentence about your own week.
  6. 6Treat a chronically undelivered service as a denied service and request a written adverse action so it can go to a fair hearing.

Bring these numbers when you testify

  • Median direct care wage: $17.36 an hour
  • Median annual earnings: under $26,000
  • 49% rely on public assistance
  • 36% live below 200% of the federal poverty level
  • DSP turnover: 37.1% a year
  • 63.7% of those who left had under a year of tenure
  • Full-time DSP vacancy rate: 9.7%
  • Your own household’s authorized hours against delivered hours

You are not asking the state to be generous to somebody else’s employee. You are asking it to price the job at the level required to keep your family member safe on a Tuesday.

The full story · For readers who want context

The best direct support professional we ever had stayed four years, which in this field is close to unheard of, and she left because she had just been recertified for food assistance for the third year in a row.

She was not angry at us. She adored my daughter. She had simply run the numbers on her own life and concluded that a job which required her to enroll in the same public benefit programs her clients were on was not a job she could keep doing at thirty four.

I have been writing about this system for a while now and I have never found a single statistic that explains more of it than this one. Forty nine percent of direct care workers rely on public assistance.

Say that number out loud

PHI, which has tracked this workforce for decades, published its 2025 Key Facts report using 2024 federal data. The direct care workforce is 5.4 million people. The median hourly wage is $17.36. Median annual earnings are just under $26,000.

Thirty six percent live in households below 200 percent of the federal poverty level. Roughly fifteen percent live below the poverty line outright. And forty nine percent rely on public assistance, meaning Medicaid, food and nutrition assistance, cash assistance, or some combination.

So a state pays a provider a rate. The rate supports a wage. The wage is low enough that half the workers it produces qualify for the same safety net programs their clients depend on. The state is, functionally, paying twice for one job and pretending it only paid once.

A correction I owe you, because the honest version is stronger

There is a comparison that circulates constantly in this advocacy world, including in things I have said myself. It goes: direct support professionals earn less than fast food workers. It is the kind of line that lands in a hearing room.

I went looking for the number behind it and could not make it hold at the national level. The 2024 NCI-IDD State of the Workforce survey, which collected data from 3,936 provider agencies across 27 states and the District of Columbia covering 344,179 DSPs, puts the median DSP starting wage at $18.00 an hour and the median DSP wage at $18.39. Those figures sit above fast food median pay nationally. In individual low-wage states the comparison holds. As a national headline it does not.

I am telling you this because the accurate version is a better weapon. PHI’s finding is that direct care workers earn less than workers in occupations with similar or lower entry-level requirements in all fifty states plus the District of Columbia. All fifty. Not a rhetorical flourish, a fifty-state finding, from the organization that maintains the workforce data.

Why the accurate version hits harder. The fast food comparison, even where it is true, invites a reply: fast food raised wages, so this is a market problem that markets will fix. The fifty-state finding does not have that escape. It says that everywhere in this country, a job requiring medication administration, seizure response, behavioral de-escalation, personal care, and documentation that stands up in a Medicaid audit pays less than jobs asking less of the person doing them. That is not a market accident. That is a rate decision, made by states, renewed every year.

What the wage buys the rest of us

Here is where the number stops being about somebody else’s paycheck and becomes about your Tuesday.

The 2024 NCI-IDD survey found a weighted mean annual turnover rate of 37.1 percent, ranging from 16.7 percent to 53.7 percent depending on the state. Full-time vacancy rates averaged 9.7 percent and part-time 13.2 percent.

And then the figure that stopped me: of the DSPs who separated from their agency in 2024, 63.7 percent had been employed there less than one year.

Read that carefully, because it is not the same as ordinary turnover. This field is not losing seasoned people to retirement or burnout after a decade. It is losing people before they finish learning the job. Nearly two thirds of departures are inside the first twelve months, which means the system is spending its money on recruitment and orientation and never getting to the part where somebody knows that your son gets loud before he gets overwhelmed, and that the loud part is the warning, not the crisis.

That knowledge is the actual service. It takes about a year to build. The field is losing people at eight months.

The part that is genuinely hard to argue

I want to give the other side its best version, because I would rather this piece survive contact with a fiscal analyst than feel good in front of people who already agree with me.

The strongest objection is that this workforce is enormous and getting more so. 5.4 million people now, with over 772,000 new jobs projected by 2034, the largest growth of any job sector in the country. Raising the wage floor for a workforce that size is genuinely expensive, and the money comes out of a Medicaid budget where every other line has a constituency too. Anyone who tells you a two dollar raise is cheap is not being straight with you.

The counter is not that it is cheap. It is that we are already paying, in three places at once, and only one of them shows up as a wage line. We pay in the public assistance the workforce enrolls in. We pay in turnover, in the recruiting and orientation cost of replacing thirty seven percent of a workforce every year and getting nothing durable for it. And we pay in the services that quietly do not get delivered, which pushes families toward the emergency room, the police call, and eventually the institutional placement that federal law obligates the state to fund.

A state can hold the wage down. It cannot hold the cost down. It can only choose which budget line the cost appears on, and it keeps choosing the ones that are harder to see.

What to do with this

Ask your provider two questions. What do you pay direct support professionals, and how long has the person supporting my family member been here. Both are answerable and a decent agency will answer. The wage tells you whether this arrangement is stable. The tenure tells you whether you are about to start over with a stranger.

Keep the log. Authorized hours against delivered hours, every month, with dates. Nobody else is keeping it. When a state finally has to publish how many authorized hours actually get provided, your household number is what makes the aggregate mean something.

Carry the numbers, not the adjectives. When you testify or write, lead with $17.36, 49 percent, 37.1 percent, and 63.7 percent. Then spend your last thirty seconds on one afternoon in your own house. The figures buy you the credibility to be listened to. The afternoon is what gets remembered.

Stop calling it a shortage. A shortage is when nobody is available. 5.4 million people do this work and hundreds of thousands more cycle through every year. They are available. They leave. That is a different problem with a different fix, and the fix has a price tag that somebody is going to have to say out loud in a budget hearing.

Her name is not in this piece because she did not ask to be in it. She sent a card at Christmas. She works somewhere else now, for more money, doing something easier, and I cannot find a single thing wrong with the decision she made.

PDFDownload the At A Glance sheetTwo printable pages. Hand it to a case manager, clinician, or school team.Download