Advocacy Resources

Advocacy is not a personality trait. It is a set of documents, deadlines, and phone calls, and all of it can be learned.

This category holds the tools: templates and scripts for legislators, agencies, and providers, bill trackers, what other states have won and how they won it, watchlists of services under threat, and the data worth bringing into a meeting. Written for the parent who has never testified at anything and would rather not have to start now.

Special Needs Trusts: First-Party, Third-Party, and Pooled

Advocacy Resources Comparison Tools How-To Guides Medicaid

Special Needs Trusts: First-Party, Third-Party, and Pooled Three trust structures, one critical rule about Medicaid payback, and the most common mistake families make: putting the inheritance directly into the autistic...

Advocacy Resources Documentation Strategies How-To Guides

Estate Planning Essentials for Families of Autistic Adults Five core documents, one attorney appointment, and the orphan beneficiary line that quietly destroys SSI eligibility if nobody is paying attention. A...

Advocacy Resources Documentation Strategies How-To Guides

Sibling Caregivers and the Conversation That Must Happen How adult siblings end up in caregiving roles, why the planning conversation gets postponed, and the shared structure that prevents the worst...

Advocacy Resources Documentation Strategies How-To Guides

The Letter of Intent: A Successor Caregiver’s Field Manual The single document that lets someone who has never lived with your adult know exactly how to support him next Tuesday....

Adult Transition Advocacy Resources Comparison Tools How-To Guides

Healthcare Options Without Guardianship HIPAA, healthcare proxies, durable POAs, representative payees, and supported decision making. The instruments that handle most adult healthcare decisions without ever filing a court petition. By...

Adult Transition Advocacy Resources Documentation Strategies How-To Guides

What Happens at a Guardianship Hearing Court procedure, demystified. The petition you draft, the evaluation that gets ordered, the questions the judge actually asks, and the evidence that decides whether...

Adult Transition Advocacy Resources Comparison Tools How-To Guides

Guardianship, Limited Guardianship, and Supported Decision Making A decision framework that starts with autonomy and ends with safety, broken down by the life domain that actually matters: medical, finances, housing,...

Adult Transition Advocacy Resources How-To Guides Medicaid

SSI at 18 and the Age-18 Redetermination Why eligibility shifts the day a young adult turns eighteen, why initial denial rates are brutally high, and how to start documentation at...

Adult Transition Advocacy Resources How-To Guides

Healthcare Decisions and Rights at Age 18 The day your child turns eighteen, the law reassigns every healthcare authority you have spent eighteen years building. Here is the punch-list to...

Adult Transition Advocacy Resources How-To Guides

Finding Adult Doctors Who Understand Autism How to vet a primary-care practice, pin them down on accommodations in writing, and walk in with a one-page passport that does the work...